Brazilian National Cancer Patient Register

Columns

• Patient.Code: An identification code for the patient.
• RCBP.Name: The name of the specific cancer centre where data was collected (e.g., RCBP SÃO PAULO, RCBP BELO HORIZONTE).
• Gender: Classified as Feminino (Women) or Masculino (Men).
• Date.of.Birth: The patient's date of birth (note: this field has a high percentage of missing values, 43%).
• Age: Patient age in years, with a mean of 60.
• Raca.Color: Race or colour classification (branco=white, preto=black, pardo=brown, amarela=yellow, indigena=indigenous).
• Nationality: The patient's nation of origin.
• Naturality.State / Naturality: The Brazilian state and city where the patient was born.
• Degree.of.Education: Education level, such as Fundamental (elementary school), Médio (High school), or Sem escolaridade (No formal education).
• State.Civil: Marital status (e.g., casado=married, solteiro=single).
• Code.Profession / Name.Occupation: Numeric code and name related to the patient’s profession, based on IBGE classification.
• Status.Address / City.Address: The current state and city where the patient resides.
• Description.of.Topography / Topography.Code: Description and code of the cancer location based on WHO CID-O3 (e.g., PROSTATA, SOE or C619).
• Morphology.Description / Code.of.Morphology: Description and code of the tumour morphology based on WHO classification (e.g., ADENOCARCINOMA, SOE).
• Description.of.Disease / Illness.Code: Anatomy description and CID-10 code for the illness (e.g., PROSTATA or C61).
• Child.Illness.Description / Child.Illness.Code: Classification and code specific to children's illnesses.
• Youth.Adult.Illness.Description / Code.of.Disease.Adult.Young.: Classification and code specific to youth and adult diseases.
• Indicator.of.Rare.Case: A boolean indicating if the case is considered rare.
• Diagnostic.means: How the diagnosis was confirmed (e.g., HISTOLOGIA DO TUMOR PRIMÁRIO, or SDO).
• Extension: Indicates how far the cancer has spread (Localizado=localized; Mestatases=Metastasis).
• Laterality: Specifies the side (Direita=right; esquerda=left; não se aplica=no laterality).
• Statement / TNM: Staging information, describing tumour size (T), nodal involvement (N), and metastasis (M). Note: TNM staging is missing for 97% of records.
• Status.Vital: Vital status, including Morto (dead).
• Type.of.Death / Date.of.Death: Cause and date of death.
• Date.of.Last.Contact: Date when the patient was lost to follow-up or when treatment concluded.
• Date.of.Diagnostic: The date the cancer was diagnosed, ranging from 2000 to 2019.
• Distant.metastasis: Site code of distant metastasis.
• year: The year of diagnosis.

Distribution

Usage

• Determining which cancers are most incident within specific populations or sub-populations.
• Analysing trends in survival rates over the 20-year period.
• Investigating patient migration patterns—specifically, whether people seek treatment within their home state or travel to other states.
• Benchmarking cancer centres to determine if there are significant differences in patient outcomes based on the diagnosis location.
• Conducting data quality assessment by quantifying the proportion of missing or unspecific values across key variables.

Coverage

License

Who Can Use It

• Epidemiologists: To calculate incidence and mortality rates across different age, race, and geographic segments.
• Health Policy Makers: To evaluate the effectiveness of regional cancer treatment programmes and resource distribution.
• Data Scientists/Statisticians: To perform survival analysis and predictive modelling of cancer outcomes.
• Clinical Researchers: To study the prevalence of specific topography and morphology codes over time.

Dataset Name Suggestions

• Brazilian National Cancer Patient Register (2000-2019)
• INCA RCBP Patient Data: Brazil Cancer Epidemiology
• Brazil Oncology Data 2000-2019

Attributes